Can I Help?
There is actually
a great deal you can do to make everyday life and the future better
for Måns and other boys with Duchennes Muscular Dystrophy.
is not much research into Duchennes ongoing in Sweden, there is
a lot going on around the world which will also benefit boys in
Sweden. Because there is no cure, this research is of course of
there are clinical trials on boys underway in Holland, but a cure
is still a long way away. Because researchers use highly advanced
computer simulations in their work, they need help with their calculations.
Today there is no computer in the world with the capacity to handle
these calculations within the foreseeable future. But you can lend
them a part of your computer’s capacity to help speed up their
calculations. And of course the more people who join in, the faster
a result will be reached. There is a worldwide community based in
the US with different projects, of which Muscular Dystrophy is one.
You can register (free of charge) at Worldcommunitygrid.
A special team – “Mans Sweden2007” has been created
to try to keep the participants together and get an overview of
where the team is compared with other participants around the world.
Phase 1 is finished and a considerably more wide-ranging project,
Phase 2, will start at the end of 2007. Join up and help out with
the other projects that are underway.
Swedish Foundation for Muscular Dystrophy Research SMDF
is a foundation which keeps track of what is happening on the research
front, what projects are underway and which areas should be targeted
right now. This is a good website with a lot of information and
facts. SMDF welcomes contributions.
going to need a lot of help and support in the future. Children
who suffer from congenital illnesses cannot get financial security
through insurance; an unbelievable slap in the face which is hard
to understand. To be able to give Måns the best possible life
it is important that he is able to experience things and have an
outlet for his interests (whatever they are going to be), that he
can go to camps and take part in activities with other boys in the
same situation and so on.
those who want to help, you can give Måns a more tolerable
life in the future by donating money to Plusgiro 114 89
52 – 3. The money will be administrated in a fund.
Our good friend David Wiles has started a campaign to raise money
for Måns and SMDF. He will run the Stockholm Marathon (May
31, 2008) and has signed a sponsorship deal with Scandic
International. They will donate 5,000 kronor to Måns’
fund and a further 1,000 kronor for each further person who runs
the marathon in a T-shirt with their logo on, up to a total of five
people. Because we hope to be more than 10 people running to raise
money for Måns, it would be good if other companies would
like to contribute in the same way.
of Stockholm Marathon have kindly waived David’s entrance
fee as their contribution to the effort. Soon we will be making
some sort of sponsor’s webpage with information about the
participants, the race, sponsors and so on. Feel free to get in
emphasise enough the importance of the old expression “every
many thanks to those of you who have already made a contribution
to the fund. A big thank you also to those of you who have bought
Jonas’ record and Grandma’s handmade garden gnomes.
You have all contributed to making Måns’ life as meaningful